Offeryn Cleifion a Gofalwyr

Cyhoeddwyd Offeryn Cleifion a Gofalwyr NACEL yn 2025 i wneud canfyddiadau’r archwiliad yn hygyrch i gleifion, gofalwyr ac unrhyw un sydd â diddordeb mewn gofal diwedd oes mewn ysbytai ar lefel ranbarthol neu genedlaethol; hwn oedd cam 1. Mae’r offeryn hwn bellach yn cael ei ddatblygu i ganiatáu i’r cyhoedd weld data ar gyfer ysbytai unigol; hwn yw cam 2. Mae data ar gyfer Lloegr, Cymru a Jersey wedi’i gynnwys yn yr Offeryn sy’n Wynebu’r Cyhoedd, gan gefnogi tryloywder a gwella ansawdd ar draws cenhedloedd. Gallwch gael rhagor o wybodaeth am ddatblygiad Cam 2 Offeryn Cleifion a Gofalwyr NACEL yma:

Sicrhewch fod bwrdd eich ysbyty, eich tîm cyfathrebu a’ch timau profiad cleifion/gofalwyr yn ymwybodol o ddyddiad rhyddhau data lefel eich ysbyty.

• Sicrhewch eich bod yn gyfarwydd â data eich Sefydliad neu ganfyddiadau eich sefydliad yn yr Offeryn Data a Gwella.

• Mae dangosfwrdd Ionawr–Rhagfyr 2024 yn cynnwys tab ‘Offeryn Cleifion a Gofalwyr’ sy’n dangos canlyniadau ysbytai ar gyfer y 5 metrig ar lefel ranbarthol. Bydd dangosfwrdd 2025 yn cael ei ryddhau erbyn diwedd y mis hwn.

• Rhannwch eich data NACEL lleol gyda strwythurau llywodraethu / y Bwrdd cyn gynted ag y caiff ei gyhoeddi.

• Trafodwch yr Offeryn Cleifion a Gofalwyr gyda’r bwrdd a’r gweithredwyr sy’n gyfrifol am Ofal Diwedd Oes yn yr ysbyty yn ogystal ag mewn cyfarfodydd yr ydych yn teimlo sy’n berthnasol e.e. cyfarfodydd ar lefel Byrddau Iechyd ac Ymddiriedolaethau (Cymru), grwpiau Gofal Diwedd Oes.

• Rhannwch eich cynlluniau gwella ansawdd sy’n ymwneud â gofal diwedd oes gyda’ch Bwrdd Iechyd ac Ymddiriedolaethau yn unol ag Argymhellion Cenedlaethol NACEL 2024 1.

  • I gael cymorth gyda QI – gellir dod o hyd i dudalennau gwe QI NACEL yma www.nacel.nhs.uk/qi-about

• Cofrestrwch i fynychu’r sesiynau galw heibio NACEL sydd wedi eu trefnu ar 2 Mehefin a 21 Gorffennaf 2026 a fydd yn canolbwyntio ar yr Offeryn Cleifion a Gofalwyr. Cofrestrwch yma: www.nacel.nhs.uk/events/

Patient and Carer Tool information

Background

The NACEL Patient and Carer Tool was published in 2025 to make the audit’s findings accessible to patients, carers and anyone interested in end-of-life care in hospitals at a regional or national level, this was Phase 1. This tool is now in development to allow the public to view data for individual hospitals, this is Phase 2. Data for England, Wales and Jersey is included within the Patient and Carer Tool, supporting transparency and quality improvement across nations. You can find out more about the Phase 2 development of the NACEL Patient and Carer Tool in the document linked below.

We recommend hospitals do the following:

• Ensure your hospital board, communications team and patient/carer experience teams are aware of the date for release of your hospital level data.

• Ensure you are familiar with your Organisational data or organisation's findings in the Data and Improvement Tool.

  • The January-December 2024 dashboard has a ‘Patient and Carer Tool’ tab which displays hospitals’ results for the 5 metrics at a regional level. The 2025 dashboard will be released by the end of this month.

• Share your local NACEL data with governance structures / Board as soon as it is published.

• Discuss the Patient and Carer Tool with the board and executives responsible for PEOLC in the hospital as well as at meetings you feel relevant e.g. ICB or Health Boards and Trusts (Wales) level meetings, End of Life Care groups.

• Share your quality improvement plans relating to end of life care with your ICB/Health Board and Trusts as per NACEL 2024 National Recommendation 1.

  • For support with QI – The NACEL QI webpages can be found here www.nacel.nhs.uk/qi-about

• Register to attend the upcoming NACEL drop in sessions on the 2nd June and 21st July 2026 which will focus on the Patient and Carer Tool. Register here: www.nacel.nhs.uk/events/

February Newsletter

2025 Data Collection Fully Closes this Week!

The Annual Death Data Collection element of the audit will close this Friday, 28th February 2026.

Please ensure that this element is completed for each NACEL submission. If your organisation has more than one submission, the Annual Death Data Collection must be completed separately for each submission.

Please note: No extensions will be granted. A sense check of submitted data will be undertaken once the data collection period has closed.

Click below to view the data specification for this audit element.

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QI Webinar!

Do you want to better understand your NACEL data? Join us for a QI webinar, with guest speaker Dr Sabrina Bajwah, looking at the equitable care sections of the 2024 State of the Nations Report and how to use the DIT to look at and interpret your equitable care data. This session will take place on Thursday 23rd April, 12-1:30pm via Teams. Register below:

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Patient and Carer Data Tool Drop-In Session

In 2025, a newly developed Patient and Carer Tool was developed alongside a group of bereaved relatives, showcasing some of the NACEL data to the public, by region or country. This tool can be found here www.nacel.nhs.uk/patients-and-carers-data.

In 2026, the tool will be redeveloped and will allow the public to see NACEL data for their local hospital. This means that your patients and their loved ones, amongst others, will be able to view some of your data via the NACEL website, a publicly available platform. A lot of work has been going on with national, regional, and local stakeholders including members of the public to develop this tool. In the coming months, more communications will follow with specific recommendations for action at a hospital level.

Join us for a drop in session focusing on Phase 2 of the Public Facing Tool which will take place Tuesday, 12:30-1:30pm, 21st July 2026. Register below:

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Dashboard Data Update

Now on the Data and Improvement Tool Dashboard view, users are able to view their January 2025 - December 2025 data.

Below you can see a screenshot of the page from the tool. Please go into the Dashboard tab, select 'January 2025 - December 2025', and here you will be able to select your local hospital/site and view your data from the past year. Please note: Data will be not considered final until March/April.

As a reminder, users are also able to see hospital/site data against the results of the NACEL 2024 State of the Nations Report, published in 2025, by looking at the January 2024 - December 2024 tab.

If you seek log-in access, please register here. You will be prompted to verify your email and the request will then arrive into the Admin's inbox, which should be the NACEL audit Project Lead for your Trust/Health Board.n.

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NACEL at the Palliative Care Congress

Look out for NACEL Clinical Lead, Dr Mary Miller, and NACEL Quality Improvement Clinical Advisor, Dr Rosie Bronnert, who will be highlighting some preliminary 2025 findings at the Palliative Care Congress on 26-27 March 2026!

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Further Information

For more details about the National Clinical Audit programme, visit the NACEL Portal.

Reach out to the NACEL Support Team at nhsbn.nacelsupport@nhs.net if you have any questions or need assistance.

Contractual requirement to participate in NACEL

Under the refreshed NHS Standard Contract, NHS providers are required to:

• 26.1.2.1 Participate in any national programme within the National Clinical Audit and Patient Outcomes Programme (NCAPOP)

• 26.1.3 Make national clinical audit data available to support national publication of consultant-level activity and outcome statistics

• 26.1.4 Engage in national outlier identification and management processes, in line with published outlier guidance

The Welsh Health Circular (WHC) for the National Clinical Audit and Outcome Review Plan outlines that health boards and trusts in Wales are required to fully participate in audits and outcome reviews listed in the annual plan.

What does this mean for NACEL?

All NHS providers delivering adult inpatient care in acute and community hospitals are required to participate in the National Audit of Care at the End of Life (NACEL), as part of NCAPOP.

Non-participation in NACEL will be treated as an alarm-level outlier, with notification shared with audit funders and care regulators.

Partial participation will also be flagged as an outlier. This includes providers who, during 2026:

• Do not submit data to the Case Note Review

• Do not submit data to the Staff-Reported Measure

• Do not provide data to the Key Indicator Metrics

Participation across all NACEL components supports best practice, enables meaningful benchmarking and quality improvement, and is necessary to meet contractual requirements and avoid escalation.

If you have any questions about NACEL participation, please contact the NACEL team.