Patient and Carer Tool information
Background
The NACEL Patient and Carer Tool was published in 2025 to make the audit’s findings accessible to patients, carers and anyone interested in end-of-life care in hospitals at a regional or national level, this was Phase 1. This tool is now in development to allow the public to view data for individual hospitals, this is Phase 2. Data for England, Wales and Jersey is included within the Patient and Carer Tool, supporting transparency and quality improvement across nations. You can find out more about the Phase 2 development of the NACEL Patient and Carer Tool in the document linked below.
We recommend hospitals do the following:
Ensure your hospital board, communications team and patient/carer experience teams are aware of the date for release of your hospital level data.
Ensure you are familiar with your Organisational data or organisation's findings in the Data and Improvement Tool.
The January-December 2024 dashboard has a ‘Patient and Carer Tool’ tab which displays hospitals’ results for the 5 metrics at a regional level. The 2025 dashboard will be released by the end of this month.
Share your local NACEL data with governance structures / Board as soon as it is published.
Discuss the Patient and Carer Tool with the board and executives responsible for PEOLC in the hospital as well as at meetings you feel relevant e.g. ICB or Health Boards and Trusts (Wales) level meetings, End of Life Care groups.
Share your quality improvement plans relating to end of life care with your ICB/Health Board and Trusts as per NACEL 2024 National Recommendation 1.
For support with QI – The NACEL QI webpages can be found here www.nacel.nhs.uk/qi-about
Register to attend the upcoming NACEL drop in sessions on the 2nd June and 21st July 2026 which will focus on the Patient and Carer Tool. Register here: www.nacel.nhs.uk/events/